Wednesday, July 10, 2019
Home, Super Sweet Home
Thanks for checking back in. Learning how to find time to open the laptop, which so far is extremely challenging.
Ok, so we got Doug home yesterday after a lengthy discharge process and loading up on the all meds.
He has a gorgeous remodeled room with a hospital bed to keep his head upright- which helps with the constant pressure there. Lots of chairs and clowny art and a friend even repainted it a warm yellow. You will enjoy being in there with him if you come over.
Gonna keep with the FAQ format since that hopefully makes the major points easier to grok.
Coming to see Doug- new process
We are reconfiguring how we do visitation now- we got in over our head and realized Doug needs more rest time and connection with family time, too. So, emailing us at firstname.lastname@example.org us the way to get to our operators standing by. Appreciate your patience with this and I am the ultimate vetter/decider based on a bunch of factors.
How is home?
So great. He is much more lucid today, super conversational, getting good rest. I feel like I have a handle on meds and the pain management for him, it seems. And Stinker the kitty slept on his bed last night which brought him immense joy and calm.
We had a great nurse friend come over to school us on tracking all the meds and vitals and food intake data so we have a record to hand to friends and family who come over to care for Doug. That made a huge difference- to feel organized. Many serious balls in the air! We are clearing out the clutter/art/toys in our house to make safer, wider pathways for Doug- and that feels great.
What about cancer treatment?
Starting radiation and chemo next week. He needs to go in daily Mon-Fri and we have friends who have volunteered to help with this trip. Expecting nausea and fatigue so gripping for additional changes that will bring into our lives as well.
How are family doing?
Thankfully, Doug's dad comes this weekend to stay with us and be with Doug, and his brother Deron comes the week after. Grateful they can make the time to visit! Hoping my brothers can come later this summer, too.
What do we really need now?
In home care. Without a doubt. The friend network is good for another week then will need something consistent in place. He needs a ton of support (feeding, bathing, walking around, going to appointments, joke telling!), and I need time to do other things. Looking for quality aides for 4-5 hours per day and not sure yet what Kaiser can really do, so if you have good leads, come at me. Best email addy: evilpip at gmail
Thanks for reading. #enjoyeveryday